Another Thursday filled with medical appointments.
First stop today, physical therapy. A nice little morning eye opener to
start the day, “Lymphedema”.
Because they removed the eighteen lymph nodes during surgery, I was informed
this morning that I am at stage one of lymphedema (the earliest of the three stages). Now, I’m not sure if this
is truly the first I am hearing about this because I was so out of it after
surgery I don’t remember much of what the doctors told me. Nonetheless, what I was told was quite
annoying, adding to the how cancer is changing my life forever. Anyway, lymphedema is the accumulation
of protein-rich fluid in tissues because of inadequate lymphatic drainage
(layman’s terms – missing lymph nodes = not all fluids processed properly in
body). So now I get to monitor
fluid build up in my left hand and arm.
Yippee!! I was shown two
simple tests to look for signs of fluid build up. One involves making a fist and looking at the hills and
valleys of my knuckles. If the
valleys start to disappear that means I have fluid building in my hands. Yippee!! I also need to wear a compression sleeve and gauntlet on
that arm/hand whenever I do any strenuous activity (i.e. all the sports I do
except for swimming) to help prevent fluid build up - forever. Yippee!! This
also explains why I cannot have my blood pressure taken on my left arm anymore
(the high pressure focal compression can lead to excessive constriction if not
properly used). Plus, there is a
whole list of precautionary things to be aware of (most involve not hurting my left arm/hand in any way, shape, or form). Yippee!! Then,
we went over some exercises I could start doing to get back my range of
motion. Finally, something good
coming out of this appointment. I
will get to have four to six more sessions to work on my range of motion.
Next, it was off to see the oncologist (of course first
stopping by the vampire to give more blood). Today, I am feeling much better than a week ago. Almost all of my symptoms are gone and
I feel close to normal. We
discussed the plan of action for my next round of chemotherapy, which will
start in seven days. He scheduled
me in for three days at the cancer center this time. Day one for chemo drugs, day two and three will be hydration
and anti-nausea meds. And, of
course, my favorite, neulasta shot on day two. The hope is that the second day of hydration and anti-nausea
meds will help get a jump on the symptoms and get them under control before
they get too out of hand like last time.
There was also a discussion about starting pain medication earlier to
get them in my system before the pain from the neulasta shot gets out of
control. And, yes, I did discuss
with him the possibility of using a medicinal herbal substance to help with the
nausea symptoms. Since insurance
will only cover twelve nausea pills every thirty days, I wanted to have another
option. He of course could not
“prescribe” anything for me, however was on board for trying anything to make
me more comfortable this time around.
Then, went across the way to the breast center to have more
fluid placed into my breast expander.
It had been three weeks since my last expansion. I am slowly getting more feeling in my
surgical area so there has been a little more discomfort the past week. I have what feels like a hard
bruise/bump at the top of the breast area. The surgeon explained that I was feeling the upper part of
the expander. It is an unfortunate
side effect of the process for reconstruction and as the nerve endings start to
have more sensation I will feel more of the expander. Oh, yay! And,
with more feeling means that the poke into the portal is more prominent and so
is the fluid going in. yay…
Five and a half hours of doctor appointments, time for a nap.
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